Thursday, October 27, 2011

My Husband is Saving the World Through Non-Violent Communication

While I am blogging about what a psycho I am and how my head hurts and whether or not I can manage to get through the day without a major fuck-up of some kind, my husband is writing letters to mayors, in order to change the world through non-violent communication.

But I am still a much better cook. So there.

Apparently, we are now going to have the 1960s again because they were so much fun the first time, and some of us were pissed that we missed out.

Anyway, it turns out I am NOT imagining it and police are ACTUALLY "using teargas, flash bang grenades and rubber bullets against unarmed and peacefully assembled Occupy Oakland (Wall Street) protesters", to quote my husband.

If I have to live through this, I think I should also get to see Jimi Hindrix live at Woodstock.

Holy Shit.

P.S. Read his letter.


This photo seems to have been taken during the riots which followed the Rodney King verdict. I have not been able to find the name of the photographer.

Wednesday, October 26, 2011

So don't stop reading me just because I've temporarily become psychotic.

Do you know that classic Yiddish fable It Could Always be Worse?

No?

Well, I can't find a good link to it, so you'll have to remain ignorant. What were you, raised in a barn?

Fine. Here, is a synopsis from Sandi's Book Reviews with reference to the tale as retold by Margot Zemach.:


It could always be worse is a Yiddish folktale. "Once upon a time in a small village a poor unfortunate man lived with his mother, his wife, and his six children in a little one-room hut." Needless to say life was not easy in the crowded small hut. When the man could take no more of the crying and quarreling, he went to his Rabbi for advice. The Rabbi listened and thought. He asked if the man had "any animals, perhaps a chicken or two?" When the man answered in the affirmative, the Rabbi told him to "take the chickens, the rooster, and the goose into your hut to live with you." The man followed the Rabbi's advice. Life in the hut got worse and the man again visited the Rabbi. Eventually the Rabbi had the man take all the animals he owned into the hut with his family. When the man went back the last time to complain, the Rabbi told him to take all of the animals out of the hut. Of course, now it seemed quiet and peaceful with just people in the hut. "With just my family in the hut, it's so quiet, so roomy, so peaceful...What a pleasure!" said the man to the Rabbi.


This is my version today, which, unbelievably, involved, no poultry at all. And also, no rabbis.

Day begins at 5:30. Migraine is immediate.

I am recovering from a weird illness  and I am really, really tired, but, gratefully, I am a little better every day, so I am trying to be peppy. In an effort to move things in this direction, I have worn hot pink knee socks over black tights.

7:30 AM: Leave Child #2 at home, currently able to walk only with the use of crutches, and suffering from chronic tension headaches due to muscle stress and pain, to sleep. He is with my mom. Yay for moms.

(Yes, I am recovering from hepatitis for no reason and my son is a gimp. This is what my life is like right now. Don't judge.)

Out of time, so I decide to delegate.

Ask Husband and Mother to please coordinate how it will work for my Child #3 to be retrieved from school and by whom, how Child #2 will be transported to therapy appointment with Husband at 12:30 and how Children #2 and #3 will arrive simultaneously from separate locations, at Doctor's office at 2:30 for an appointment that will entail A) a re-check of sprained meniscus and B) flu shots for both children.

(Got this? No? Me either.


This appointment will likely involve Child #3 needing to be held down by multiple adults to prevent him from running screaming from the room.


Plus therapy and the evaluation of injury to my Soccer Star.


Kind of combo package.)

I ask Mom and Husband to PLEASE convey instructions to me on my part in this craziness. By way of text message.

Go to work.

Beat head repeatedly against computer screen as I try to understand how to use the latest version of Excel to do a task I have never needed to do before, using Mac OS, which I don't know how to use, and a server system that I don't understand, to do tasks that I badly needed to complete in the recent or ancient past.


Celebrate minor successes.

At some point, receive text from Husband with info on after school plans, which I think I understand. Race off to next obligation. Yay for husbands.

Image by Nate Steiner

Notice I have accidentally erased all of one student's data and replaced it with another's and that all of the spreadsheets are headed with the same teacher's name, inexplicably.

Call tech support, as directed by site IT personnel, to retrieve standardized testing data on my students.

Get hold music for five minutes followed by being hung up on, at which point I am out of time again.



Test three students, to discover, yet again, and with a still greater sense of urgency, that I need a time turner right now in order to be able to do my job because I cannot provide services to reasonably sized groups of children within the allotted time without it.



Perhaps the PTA would fund this purchase?

Blood pressure rising, rising, rising.

Return to data entry.

Remember to ask for help.




Receive offer of help from wonderful colleague, only to lose the use of my room due to complete wild card circumstances, at the EXACT moment that this help was available, so as to render it unavailable, while I have to wait outside in my hallway, helpless.



Fail.




O.K. I admit it. I am just not getting out of here at 12. But I can deal with that.

Call Mom. Tell her I have to work late to get some of this done, so she won't see me. She says, "Yes, but aren't YOU picking up Mikalh?"



SHIT!!!!!!!!!!!!!!!!

RUN down to his classroom five minutes late. Which, in the history of LIFE, I have never been, to get my kids because I am compulsively, hopelessly, irrationally committed to being early.

Feel my sense of self shatter into several small pieces held together under the barest veneer of shit-maintaining normalcy.

by MyAimisTrue


Get Child #3 to Mom. She drives off to get Child #2 to Husband.

Call Best Friend. Cry. For an hour.


Tell her AT LEAST I am meeting with the teacher who runs my program tomorrow at 10 and she will help me.

Piece the Shit together just a bit.

At some point, Child #2 is delivered home. And I plunk him back in the car and take him to pick up Child #3. Ask Mom to follow me to the doctor for 2:30 appointment, stay while Child #3 gets shot and take him away. There is shrieking and there is restraint, but, I was smart enough to have Mom bring her own car.

And she takes him. Bravo for moms.

(Then chickens start walking all over the kitchen counters!!!!!!!!)


Doctor says: Sprained meniscus now has fluid under knee cap, unexpected levels of pain.



Xrays.

Worry.

Orthopedic referral.

Tomorrow.

At 10. (When my life-saving meeting is.)



Got home at 4:30.

Too late to cook and get Child #1 to Tae Kwon Do at 6pm.

Eat out.


by ImagesofMoney


But my husband can go to the appointment.

So I can have my meeting.

But I feel like a crappy mom.

I miss when I just had the migraine.



The upshot is I think I believe in God now and that God wants me to give over trying to control anything and just ......

...........If you can answer the just, give me a call.

I will write something funny tomorrow.

I am thinking about writing a post on swearing. So don't stop reading me just because I've temporarily become psychotic.










Saturday, October 22, 2011

The Mutiny of Self-Care



Medical Update: As usual, I should have listened to Dr. House. Because it seems like it really isn't fucking Lupus.

(not yet)

(...pretend now that mysterious, ominous music plays in the background...work with me...I'm trying to create a mood here, people....)

Now my liver panel has returned to normal. Miraculously. And without explanation.

Because really my body likes to play these practical jokes. Just to have a bit of fun, I think. Keep things interesting. I am totally NOT complaining. Having a liver biopsy is NOT on my bucket list. So, I am happy to skip that. It seems that the cause of the hepatitis will remain unexplained.  I will now commence getting better.

Here's the anti-climax bit to getting this news: I really felt like absolute crap yesterday. Worse than I did the day I went to the ER in the first place.

The thing about chronic, unexplained illness, is that you really get in your head about symptoms: It gets to a place where every bruise you have, every pimple, every dizzy spell has great diagnostic significance to you.

"I have a mouth abscess? But that is typical of lupus patients!...I wonder if this this visual disturbance is due to damage to the myelin sheath of my occular nerve...Oh, wait, there's an eyelash in my eye..."

I am not even going to go into telling you how helpful it is to Google things.



That is why people suffering from chronic, diagnostically difficult illnesses are always such assholes when friends, in a genuine spirit of helpfulness, offer up various illness their relatives have had that sound similar to what we have, or tell us about all the potential complications to medications,which, in desperation or blind faith, we are taking.

We already Googled that, folks. We're just forging ahead anyway. Gotta trust the doctors, because what else is there to do?

Please, don't answer that with a suggestion about blue-green algae, or I will be forced to take your life with my bare hands.

Anyway, I was telling my dad about all the horrible symptoms I have and it dawned on me:

This is a description of extreme, incessant exhaustion.

Perhaps, I just got sick and had to resume my normal activities before I was really ready, resulting in the fact that I am falling down tried. Could it be as simple as this? Looking in the mirror, I see a version of myself looking utterly haggard, with deep, dark circles under my eyes and pale skin. I just look tired.

Maybe I'm not dying. Maybe I'm sleepy.

Anyway, I was directed by my husband to stay home from the trip to Bernalillo and rest today, to try and recover. This is how this is going: I woke up at 7:30 anyway, came downstairs, drank coffee, lest I suffer the horrors of a caffeine withdrawal-induced migraine, figuring I'll go back to bed after, but I can't get sleepy. I can hardly walk a straight line, I'm so tired, but I am not SLEEPY. FUCK. I have cooked brown rice and frozen it in bags. Boiled eggs. Made shopping list. Kitchen is all fucked up now. Sent email. None of this is physically exerting. Maybe I can go to bed now?

When I wake up, my kitchen is going to make me cry. There are costumes and Halloween make-up strewn all over my living room. My mom has my little one, and I feel guilty that she does. I should let her bring him home. There are two bales of straw on a ten by ten plot of horse manure sheet mulched for next year's permaculture experiment. I need to wet it down and spread the straw. I have to shop tomorrow. I have to plant 200 tulip bulbs because it will be too late before I know it. We have to clean the house.

It takes a lot of will power to go back to bed, despite every trash-talking voice in my head that's trying to make me get up and clean the kitchen.

Do you know, do you really know how HARD it can be to do what people call "take care of yourself"?

It just rolls right off the tongue, but it feels like an act of mutiny.

Where is the Mason-Dixon line between a self-realized, empowered woman who models caring for herself and a selfish, self-involved, neglectful mother and derelict, needy wife?

Between a vibrant, happy mother- member of a multi-generational family, letting a grandmother involve herself in her children's life and a selfish, self-centered grown child, taking advantage of an older woman, never having time to give back to a mother who needs her?

These are the questions that keep me downstairs, scrubbing the fucking kitchen when I feel like I am going to cry from exhaustion. That generally keep me from calling my husband home from work when I am having trouble standing up long enough to make dinner, and I know coming home early means he has to work late from home later.

Taking from others when they never have enough to give themselves either.

I don't do it for the martyrdom, I do it for the peace of mind. Because I would rather be boiled in a vat of hot oil than feel like I let my family down. I hate exhaustion. But I hate guilt even more.

I guess that makes me one mentally deranged woman, but I bet I'm not the only one.

Here's my compromise: I get to say what is true for me. Into the public world. As an act of faith and beauty and truth. If I can't give the world as much time or money or help as I want, I can give it my words, as a mirror of what's in my heart and mind. Whatever makes me laugh, or cry or think.  I get to be true to myself. Publicly. Wear what I want. Say what I want. Be who I really am.

And, after I have sat down to do that for half an hour, I will go back to taking care of what the world needs from me.




Thursday, October 20, 2011

Dark Path Through The Woods


So, briefly, it turns out I don't have Mono. There is, in fact, an exhaustive list of things I don't have, which includes hepatitis A-Z, copper something, iron something, autoimmune hepatitis and rabies. Et cetera.

I did once have Epstein-Barr, the virus which causes Mono, but I don't actively have it now. I don't take medications or supplements which would cause liver problems. Ultrasound shows somewhat enlarged liver and spleen. The liver enzymes taken last Wednesday were somewhat better than the ones taken that Sunday, when I was in the ER, but still high.

My doctor ordered more liver blood tests, for which results will be in tomorrow morning. If they are still high, I need to see a liver specialist, and likely, have a biopsy. If they are normal, then we might consider the fact that I have unexplained hepatitis a fluke caused by some unknown factor, perhaps a virus?

In the background looms the specter of Lupus. The following evidence exists for this diagnosis: widespread body and joint pain, mild fever at last doctor's appointment, pleurisy in the ER, elevated muscle enzymes, elevated liver enzymes, enlarged liver and spleen, positive ANA (which is a blood test that shows that your body's immune system may be attacking healthy tissue, but sometimes healthy people have positive ANA).

But, it is really hard to get a diagnosis of Lupus. I believe it takes an average of ten years to make a diagnosis. And it's kind of a crappy disease because it's chronic and incurable, although somewhat treatable and very rarely fatal.

Anyway, although I suspect Lupus, and my doctor suspects Lupus, we know I don't meet the criteria for that diagnosis, and we don't actually know what the Hell is wrong with me. Which CERTAINLY might be something besides Lupus.

Who knows?

I have learned not to get overly squirrely about these pleasant doctor's visits, but I think this much is clear:

It is time to make a Plan B for the exteme likelihood that I will continue to suffer from chronic conditions that flare not too infrequently, requiring major adjustments to all facets of my life. It is time to stop acting like this is just about to be over any minute now.

I am OK.

I just feel like I'm staring at a dark path through the woods again.



Tuesday, October 18, 2011

I Am EXACTLY Like Michelle Pfeiffer

Michelle Pfeiffer, in her starring role in Dangerous Minds


Me, at the Los Alamos Little Theater, watching a local production called "Seussical"
My friend Patrick Kelly took this picture, by the way.














Do you see what I mean? No? O.K. So, if you're going to require further explanation, here goes:

Did you see Dangerous Minds?

Well, I practically live that movie.

In the movie, Lou Anne Johnson (Michelle Pfeiffer) an ex-Marine, gets a job teaching high school English in a hell-hole California gangland school whereupon she rocks the system and saves the souls of the bad-ass teenagers in her class through her blend of Bob Dylan, candy bars, personal affection, and an unwavering expectation that they deliver the academic goods.

Very few students actually died.

My story is similar.

I work in a Los Alamos school, in a  place where the median family income is just under $87,000  similarly disadvantaged area , and schools that earn scores such as 10 out 10 on GreatSchools.com's measuring stick  allover crappy schools , the greatest concentrations of PhDs per capita in the nation , and uneducated, indifferent, parents.

Just LIKE Michelle Pfeiffer. With me so far, right?

So, they let me teach a scripted reading program program I made up out of my own brilliance under very limited supervision all by myself, to kinder and second grade kids who need an extra scoop of help, for one reason or another, at this point in time.

And I have these visions of myself.  Saving their souls.

I will teach them phonemic awareness. We will clap syllables together. They will blend phonemes. They will learn to read "consonant-vowel-consonant-e" words correctly. They will learn to correctly distinguish the main idea from the details in a story. They will learn the meaning of the word "gusto".

And they will rise up to greet me at their high school graduation, at which they will ALL be valedictorian at the same time and they will say to me "Ms. Adams, you have taught me how to be aware of phonemes and now, because of that awareness, I am able to go out into the world and solve all of the problems in the Middle East.

You are the LIGHT."

And so on.

I think we are moving in the right direction because some of them can tell the difference between letters and numbers now.

The nice thing is that these kids are generally thrilled to see me no matter what I am asking them to do and learn. Today one little girl RAN all the way to my classroom to take a short standardized test. Who RUNS to a test?

I appreciate the love. And, I find I really love these kids, too, and look forward to seeing them each day. They totally laugh at all my lame jokes, and some of them even like my hair.

They must think I'm Michelle Pfeiffer, too.

In all seriousness, though, I have a private student, much older, whom I adore. He is someone I have known for years now, and I am helping him to learn to write without getting upset about it. He is brilliant and creative and smart, but he has a learning disability and so he dislikes writing. I have told him that I do not care if he spells one word correctly, or if his punctuation is correct, or even exists, but I want him to have fun, so we have practiced re-writing boring, stupid sentences and making them interesting.

Then I tried giving him a worksheet, sort of like something you might come up with in Dungeons and Dragons, to create the basic outline of a fantasy character. Secretly, I felt like an idiot having him to do this, and I kept worrying that he might notice that this was a really stupid idea. The next time we met he chose a writing prompt that had him create a scene where the character he created got in trouble with authority.

And he sat and wrote for over thirty minutes on his own.

When he read what he had written, I wanted to cry, because it was REALLY good. He wrote GOOD dialogue, with an interesting plot twist and realistic sounding speech.

And then he wrote a brief description of the setting and it was good, too.

So maybe I'm not the light, but THEY are.

And, that folks, is why I get up in the morning. Because kids inspire the Hell out of me.

Despite the fact that I am nothing at all like Michelle Pfeiffer.

And in MY story, NO ONE died. :)

Wednesday, October 12, 2011

My body and I just have different needs.

Wow, it's been long enough between posts, I could almost imagine you missed me. What's up with you?

Here's all my down-low:

So, my eldest son, who is fourteen, saved up all this money for his own I Pad and was all "How cool is that? My son works hard, saves money, defers gratification, keeps a goal in mind, gets what he wants. He must have an excellent mother. I can totally see Harvard in his future."

Fast forward two weeks. I now live with Smeagol and his Precious.

I think I may have finally convinced my child that just because he purchases something with his very own money using his very own debit card does not mean that he can use it at all hours, for as long as he wants, doing whatever the fuck he wants. I had to be a bit of an asshole about this, but there it is. We have never owned a gaming system. We don't have cable. We are not "those kind of people". Hence, I am DAMNED if my child is going to spend all of his free hours playing Fruit Ninja. If he wanted to learn how to program, or read i Books, I'd be somewhat more permissive about screen time (since it would allow me to keep looking good as a parent to myself).

In other news, I have been spending a  lot of time feeling like crap. So much so that I am running out of things to write about, since most of my thoughts relate in some way to feeling like crap and I get tired of writing about it. I think if I could generate a large following of crap-feeling people, this might be OK. To everyone else, it may get dull. I will spice things up by swearing more.

And so on.

So, on Sunday, after church, I ended up in Urgent Care because I had chest pains. My chest pains were more Mike's problem. I was more concerned about the fact that my vision was making me feel like someone had slipped a half-hit of acid into my morning coffee. Lights were flashing, I had tunnel vision, an odd sensation causing various inert objects to appear to be peacefully moving, and the edges of everything were blurred. This is what is known to migraneurs as aura. A particularly acute aura accompanied by the real concern that I might fall over due to dizziness and lack of vigor. Urgent Care sent me to ER because they wanted to know if I was having a pulmonary embolism. Which I wasn't.

Chill, people.

Anyway, after spending hours patiently waiting and having my arms repeatedly poked due to my usual lack of usable veins, the doctor declared that I was not having a heart attack, stroke or embolism but that my liver enzymes and muscle enzymes were unusually high, and I had pleurisy (which sounds like a crude insult or a form of government). He let me know that I should see my regular doctor to find out what was wrong with my liver.

So, hi ho, hi ho and off to work I go this week. I was more or less fine yesterday (if your standards are appreciably low), but today I ended up feeling I was wearing those invisible psychedelic glasses again, so I went home early. I went later to the regular appointment I had with my doctor and got to tell him all about how I spent my weekend. He is a very good listener.

After he had listened, he said that the most likely cause of all of this fun is mononucleosis. Which is what you get at summer camp when you are thirteen and kiss the greasy boy with braces down by the canoes.

This is Mono. Kinda cute, huh?
Apparently, it is less usual but not totally impossible to get it at the age of thirty six, as well. So, here's hoping I have mono because all of the other things that would explain my problems are much less tolerable and longer lived. I donated six vials of blood to the medical laboratory, strictly for the purposes of advancing scientific inquiry you understand, and I get to have a liver and spleen ultrasound on Saturday because both of these organs are enlarged. Which, apparently, is totally how things go if you have Mono.

All of which leads me to the definite conclusion that it is time I broke up with my body. This sack of bones has got to go. Ever since it produced three wonderful children, all it's done is piss me off. It has gained fifteen pounds as a side effect of the medication that makes all the horrible, nasty pain go away. It has swollen lymph nodes, irritated organs, multiple chronic conditions, and it does NOT want to run!

My body and I just have different needs. I think we'd be happier living apart. (No, this is not a suicide note. I want a goddamn new body.) Kind of like a cylon.

So, anyway, if you see my body somewhere anytime soon, tell it go fuck off.

Love,
Tara

P.S. And tell my son to get the Hell off his I Pad and study his chemistry so we can visit him at Harvard. (If we visit there while he's attending NMSU, people are just gonna think we're lame.) And it's all about the public, people.


P.P.S.: UPDATE: This is FUCKING awesome! There is actually a symptom associated with Mono (and migraines) known as Alice in Wonderland Syndrome. How totally brilliant for me! I have been waiting for such a thing all my life. At least I can stop accusing my husband of dropping LSD into my coffee now. Wow, tracers!!!!!!

Thursday, October 6, 2011

Run for Your Life

I am no athlete.

There are only two sports in which I have ever competed, and both of these were in middle school. The first, oddly, was girls' wrestling, which I was actually quite good at.

The second was track and field. I was, in middle school and in high school, exactly the kind of PE student that teachers hate. I walked around the track, rather than ran, was totally indifferent to competition, acted half-asleep on the fringe of every game, and managed to wear a skirt nearly every day to P.E., resulting in my "having to" sit out.

But I loved the 100 yard dash. Just for that few seconds of time, I had wings.

Distance running for me, made me feel like an anemic elephant, wearing leg weights and a tight strap around the chest, but sprinting felt like I had become one with the wind. There was no real pain involved because the run was too short, and, afterward the rushing blood pumping through my system was an opiate.

I never made the transition to real runner, but I never completely got over that feeling.

During my adult life, I have often had a gym membership and enjoyed using a tread mill (to walk or do run-walk intervals) and lifting weights. It stuck in my craw that I couldn't run distances, and so I tried it again in my mid-twenties, chasing that runner's high and sense of personal victory. My chest heaving with strain and a burning, searing pain tormenting my leg muscles, I ultimately worked up to, at most, a mile. My knees hurt like hell, so I hired a personal trainer to help me figure out how to fix whatever was causing the problem. She had me do ridiculous amounts of quad exercises, but the knee pain didn't improve. I crapped out. I hate suffering. I just won't sustain it for very long if I see any out.

For a few years, I was in the habit of getting up early every morning to do Pilates or cardio kickboxing with a DVD before showering for work. This impressed lots of non-exercisers since I was, at that moment, the "good girl" that they could not relate to, but, for myself, I was busy envying the women who run.

In Los Alamos, running is the thing to do if you want an in with a wide social network of women. They kept showing up on my Facebook page, beaming in cool pink technical t-shirts and glowing, apparently, with the deep satisfaction of not being me, a person who could NOT run.

As I was busy exercising and being envious, my work-out regimen hit a major roadblock. I developed severe seasonal allergies and spent the next two years having an almost continual sinus infection with associated asthma attacks. I had asthma symptoms in the cold air, wherever there were pollens, wherever there were chemicals, if I exerted myself and, sometimes, for no apparent reason.

It was nice to finally have an asthma diagnosis to explain, at least in part, my life-long cough and hatred of extended cardiovascular exertion, but every time I got a bit well and attempted to develop an exercise routine, I would get yet another sinus infection or asthma flare and get benched again due to feeling like utter crap. Finally, I decided that sanity in this case would take the form of waiting to see if my conditions would improve, over time and with treatment, enough to establish an exercise routine and stick with it.

After two years of allergy shots and lots of albuterol, things improved.

So in the late winter of 2010, I took a leap of faith and started trying to learn to really run. I had a wonderfully patient friend, Shana, who ran, and she helped me to take baby steps toward becoming a runner. The most surprising thing I learned from running with her was that I was trying to run too fast. (Don't laugh. It was too fast for ME.) If I could tamp down my body's overwhelming desire to run something closer to a sprint (well, maybe the sprint run by an especially speedy tortoise), I learned I could maintain a run for some period of time.

Ultimately, with practice, I could do it for a 5K distance. That meant I could actually run with other women, which gave me the benefit of an expanded social life along with my exercise. I even ran two 5K races, where I worked hard enough to feel afterward that I might throw up. (The split was just a bit over a ten minute mile, which is laughable to a competitive runner, but hugely cool for me.)

Being able to do that felt like an enormous improvement on the lazy mid-schooler who walked stubbornly around the track.

Then, close to the holiday season of that first running year, as the bitter cold of winter set in, I started having increasing pain in my joints. The pain spread into my muscles. And so on.

I was in pain every day for a good long time. On top of that, the cold was really fucking with my asthma, as improved as it was. I felt defeated. I had migraines a lot, and all sorts of other pains, and running just hurt.

Even with all that pain, I really did not want to walk away from what felt like this huge triumph over the past, this feeling of having wings.

Ultimately, the rheumatologist I saw said that I should stop running, at least until we knew what was wrong with me. I admit that I felt some relief just being able to say I had to stop for a while, as it sort of implied that I might be able to start again later, and I was sick and tired of bailing on running dates and wondering if I should have pushed myself and gone.

No matter what, I had been feeling screwed. If I ran and had to keep stopping to walk, I felt like the biggest wuss in the group, and also like I was holding everyone else back. If I toughed it out and kept up, sometimes it would work out, and other times I would face the rest of my day in a haze of exhaustion with shooting pain in all my joints. If I canceled, I felt like a flake. Everyone was nice to me, but I still felt like I was always doing the wrong thing.

Last April, a neurologist prescribed a drug for me, Amytriptaline, to treat what he called "neurologic pain" in the form of both migraines and myalgia (muscle pain). He was the first person to say with confidence that he knew what was wrong with me, and thought he could help me. After countless previous doctor's visits, yielding nothing but more referrals, it felt like a life preserver was finally thrown out.

And the drug started to work.

It would not be an understatement to say that I feel like taking it gave me my life back. This sounds ridiculous because I currently suffer migraines on approximately half the days of any given month, but the muscle pain, exhaustion, and mental fogginess that had reduced my life to an attempt to survive every day faded away.

By the start of this summer, I was ready to try and run again.

Working back from the ground up after a break of several months has been a trial by fire for me mentally. I have to confront the ground that I have lost, the distances that were once easy and now were way too long, and the fact that I have to stop and walk or fall back and quit early when others run on.

All of this, inside my head, is difficult to face. I have tried running alone, with my dog and a Garmin to help pace me, and I have learned to almost enjoy it, but I always end up running faster than I can sustain, and I crap out easier without the social pressure to keep on. I have put running in my calendar in several places every week, but I always find it hard to keep on track. An existence punctuated by frequent bouts of migraine pain and exhaustion, and lots of regular responsibilities does not facilitate fitness integrity, it seems.

It's frustrating and satisfying by turns. I love when I can suddenly see the ground I have taken. I hate when all I can feel is the discomfort and strain.

As much as I want to be well enough to do this, one thing I know now is true is that I am not yet well enough to do it the way I want to. I want to be able to run a steady pace 5K with relative ease, to keep up with the group, to be 100% reliable for being at all my runs every week.

Right now, I just can't get there. And I can't figure out if my problem is at least partially mental, or whether it really is too hard to run four times a week, and do Pilates three times, while working and having fifteen migraines a month. When I read this back to myself, it sounds like a lot of feeling sorry for myself, but there it is. That's what I feel.

Maybe only another person who suffers from a chronic painful condition can really understand the mental battle that gets fought here. I am trying to prove to myself that my disorder can't make me give up what I love in my life. Simultaneously, I am too tired of pain to fight with my body all the time and make it do what it doesn't want to do with consistency.

I don't have an answer. Today, I almost feel like giving up again, since after this last bout of severe migraines, I can't seem to get my energy back. All I want to do once I get home from work is sleep, despite getting seven to eight hours in bed every night.

One part of me says that this is just how I feel this week and tomorrow might be different, next week might be different. Don't give up. Be satisfied with doing it half-way. Anything else is my ego talking. But another voice says that my problem is that I don't push myself hard enough, that I'm not doing it right, that I'm making excuses.

Who knows where the truth lies. All I want to know is that I am always hoping that I can return again to that feeling of having wings, even if it is interspersed with a bit of pain. I also want very badly to be a runner.

I have a feeling that the only way out of this mental turmoil is through a hard won acceptance, the peace that is a product of ambition tempered by years lived beating one's arms uselessly against the tide as it insistently crests and falls upon the shore.

The question is:
If I stop fighting the power of the wave, will it drown me, or carry me gently to the shore?



My Zimbio
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Faith in Ambiguity by Tara Adams is licensed under a Creative Commons Attribution-NonCommercial-NoDerivs 3.0 Unported License