Saturday, April 20, 2013

Love We Don't Deserve

Photo Credit: Morguefile by imelenchon



I have fibromyalgia. Because I don't write about it a lot, I think that I have some readers who don't know this. I have fibromyalgia and chronic migraines and TMJ, and this week, it was bad—all of it, at once. If you have people in your life who manage chronic illness, you may want to know that the reason they look like they're doing so well is because you normally don't see them when they are not doing so well. We tend to stay in, and we tend not to want to broadcast our pain into the public world because what we get back when we do doesn't always make us feel better, even though we are also dying for people to know what it feels like, in some weird, childlike way.

I wrote this because I decided that I was going to go crazy if I didn't, but I am sharing it, because someone else may feel like they are going to go crazy because no one feels the way they do. If you know someone like that, share this with them. They may feel better, if only because they are doing better than this. And, so you don't worry, even I am doing better than this. I am doing awesome. I am a great mother and I am still continuing to get up and care for kids and, in fact, educate them, and I have been nice twenty times for each time I haven't been. But this is how it feels to be in so much pain that you have to to do something and to find that there is nothing to do, and this is what it feels like to receive love inside of that space—at least for me. So, please use this piece to find compassion for yourselves—because we can all relate, on some level, to a pain too large to bear—and for others you come across in life who may behave like wolverines with their leg in a trap when you are just trying to be nice to them.

Tara

It took a while to notice that the pain had become a balloon inside which all the air was trapped and everything was expanded, and nothing could get out. For five days, it had been there, getting louder, and I had been enduring, and doing nice things, and now there was no endurance for it left. Now I was furious. I wanted to smash the breadth of it against something hard and watch it shatter, yelling “How do you like that now?” but there was nothing to shatter but my own plates and cups and ornaments and relationships. I wanted to scratch it and watch it bleed, but it didn’t have a body. It just had me, and after all these years, I am tired of watching myself bleed. I gnashed my teeth at it, and—mirror-like, it gnashed back.

As all this went on, my husband sat in the living room relaxing and my children watched something on an iPad that I’d told them they couldn’t be on until all the homework was done. And cups and dishes and coats and papers and shoes and cat hair and sounds were left all over the house, hanging onto and nullifying the neatness I can remember having won.

So, I got up to clean dishes, because if I didn’t I was going to have to smash them, and my husband said, “I can do that later, hon.” And I ignored him because the cups and the dishes and the coats and the papers and the shoes and cat hair and sounds were there now, not later, and later never fucking comes anyway. And then I decided that I wanted to smash my relaxing, not-helping family and watch them break against the wall like pieces of china just so that they would be silent and stop ruining everything. But I could remember having loved them a great deal and having hated myself for hurting their feelings before. And I felt sorry and ashamed and beaten and still-destructive all at the same time.

So, after the dishes were loaded, instead of smashing my family, I went to my bedroom and tried to focus all of my concentration into the part of me that could be still. I became a rock on an expanse of sand, just lying there on my bedspread, with no muscle pain tearing my body apart, and no jaw pain ripping open my skull, and no headache that bored into the thinking part of my flesh. I am just a rock, I thought. And a rock feels no pain…And my husband came and went like a timid mouse, bringing pills and putting up with me and suffering silently and distancing himself emotionally for his own protection but being good, and I just lay there and I just wanted someone—anyone, but especially him, to break the balloon and come in and get me or at least squeeze into that space and nestle beside me, for just a minute, so I didn’t feel so alone.

Instead, though, everyone stayed away and ignored me or did their best and always remembered that the balloon in question is where an angry, volatile, hurting person lives. And, instead, I went to sleep on waves of physical agony and despair and woke up still hurting and wanting to smash things.

But I also remembered that I didn’t want to spend the day in the balloon alone again, where the pain bounced off the latex walls in echoes and hit me again as it came back, so I sat down and wrote this, and then I gave it to my husband, who was going somewhere, and asked him, “Do you have time to read this now?” and he did.

And then, as his arms reached around me and the softness of his always-warmer caramel flesh pressed up against mine, all the pain still ripped through my body, but the aloneness slipped out like air through a tiny hole made by a pin in the balloon. And, because of this, I think I can get up and go take a shower now and, because of this, I think that I can get through at least one more hour. And because of this, I think that the Universe might love me, too. And I am so glad, because it is when I am most unlovable, when I am fighting and spitting and raging and sobbing inside, that I need this assurance the most. 

Sometimes, we all need to have access to that love we don't deserve.

16 comments:

  1. I go through depressions, and I find the same thing: It sort of sneaks up on me, and one day I realize that I've really been in the midst of a battle.

    I don't think anyone else can really be in that battle with you. Other people can lighten the load a little, but they can't REALLY join you there.

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    1. I think you are right, ultimately, and that this is a lesson I keep learning time and again. No one CAN be in the pain but the person in it. And at the same time, there is some kind of enormous comfort that is provided by that moment of connection in the midst of pain, and learning to ask for that in a responsible way is something I am still endeavoring to learn. I am tremendously grateful to my husband for going at least 9/10 of the way to meet me while I try.

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  2. I read this and cried. Not because of the daily agony you go through living with chronic pain, although I do feel that pain, that rage and that frustration, but more because of the terrible all-encompassing loneliness that comes with it. The cage of pain is small and the void it's in is so vast and so black. It is a terrifyingly lonely place to be. *hugs*

    I admire your ability to write it down and your strength to show it to your husband.

    I tend to trudge through the day, doing a bare minimum of what needs doing, shut down and just go to bed with the pain and the loneliness bottled up inside me, until the worst is over and the pain receding back to a point where I can better cope with it and the rest of the world.

    I build walls without doors, or windows in them, making it impossible for anyone to come inside. When the walls crumble, crack and eventually tumble down, the results are ugly. If I wasn't depressed earlier, I most certainly am afterwards.

    I need to work on communicating better. I remember some years ago we were dealing with some issues where so many emotions and feelings were involved, I sat down and wrote him a letter in pure desperation. The following discussion went better than I had dared to even hope for. I should use this approach more often.

    We all need to have access to that kind of love.

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    1. Cara, you have so perfectly expressed exactly why it is that I try so hard to find a way to connect in the middle of that place. It's exactly because I FEEL like withdrawing and hiding and because I FEEL like I don't know how to begin to ask for what I need but still manage to resent not getting it that I am pushing myself now to try somehow to communicate. I have found that somehow I will always manage to shatter at just the wrong time if I haven't found a way to take care of myself and I am still sorting out what kinds of care can be provided by my mate and what parts by friends and what part only the stillness of my heart. Thank you so much for sharing. I think I wrote this for you. I posted it for whomever needed it to hear it, despite the fact that it was ugly and made me look broken and sad, and I'm so glad someone did.

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    2. Recently I am learning more of the mind-body connection, the idea that pain is created first in our minds, even if it is so very painfully obviously physical.

      What you and Cara shared is why I started to look down this path. It is not easy, or polite, or pretty to look at, but when I am stuck in that place of... well, stuck. Help. Pain. Trauma. It is something to look at at least.

      Today I received a book called "You can heal you life" by Louise L. Hay. I have only begun to scratch the surface, but in combination with this post, it seems well timed.

      I am not sure what else to say, other than I can relate. I can relate, so, so much.

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  3. Beautiful, darling. I will reach out with a hug through these tubes always. Not the same as the "always-warmer caramel flesh", but it's there, you know.

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    1. I do feel infinitely better, both physically and mentally. It always passes. It's the art of being at peace in the pain that I'm working at.

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  4. You are a great writer. You just made me cry. That blanket of sadness and the urgency of trying to change things so that I'm not overwhelmed by everything has had me all tied up in knots. But I'm so thankful that I am not compromised by pain and health issues, and I'm sorry that you are. You have such a knack for description. I hope you are feeling better.

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    1. I am. I really am. There is pain, but it is not large enough to take over my mental space. And I am making my mental space a big larger by learning to meditate. This really seems to help the desire to smash things. I'm awfully glad you can relate. Well, that sounds bad, but I think you know what I mean. :)

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  5. I admire the fact that you can describe something so hard in such a beautiful way. It can be difficult to let others in when they can't actually 'fix' the problem. I'm sure it's hard on them, too, wanting to help.

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    1. It is really hard on them. That role is not one I've had to take a lot, and I know that it is one that presents a lot of challenges of its own.

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  6. You have taken such misery and made a miracle of it. And you've so bravely put it out into the world so it may help someone else--a miracle within the miracle. Thank you.

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    1. Thanks. I frequently find that all I really have to give the world is the whole truth, so I give that. If I had math skills, perhaps I wouldn't need to do this. ;)

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  7. I would wrap you up in my arms and give you a great big hug, a hug that tells you there is no such thing as love you don't deserve. You are you, and that is enough.

    Just ask any mother.

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    1. In the larger sense, this is so true. Thanks so much for the love.

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  8. This. I feel no pity for you. I do, however, feel lots of love and hugs for you. I also feel so much admiration for your writing, and Mike. :-)

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